I've blogged a lot about what medical problems Zac has guess what it's more about him. Zac has never taken a bottle ever, he just wouldn't, even lately I've tried pumping and giving it to him with no success. At around 4-5 months we tried feeding him rice cereal and he had no interest in it. At his 6 month visit they said not to be concerned that this is normal. We continued to try different baby foods solids and he had no interest in any. He would randomly break out in hives and sometimes it was as much as daily. At his nine month visit we heard more of the same it's not uncommon just keep trying.
At his 1 year visit he had gained no weight since his 9 month which caused concern, it's called failure to thrive. At that point blood work was taken to run a RAST (a blood allergy test). It came back that he was allergic to milk, eggs, soy, wheat, and peanuts. We were then told to take him to a nutrionist. Who gave us some wonderful ideas and who referred us to an allergist.
We then saw Dr. Taylor (the allergist) who discovered that Zac had an allergy to milk, egg, and tree nuts. And that he only had an intolerance to soy, gluten, and peanuts. Dr. Taylor said although he does have allergies they wouldn't cause him to lose weight and definelty would not have to do with his lack of sleep so he referred us to Louis Mizzel (a gastroenterologist).
Dr. Mizzel scheduled us for an upper GI and a colonoscopy to see if he had eosinophilic esophagitis. When we got the results back we found out that yes he did indeed have it and a pretty bad case. Dr. Mizzel said it wasn't THE worst case he had seen but pretty close. So he was put on a round of steriods and previcid. The round of steriods didn't help his willingness to eat and in fact he was sleeping worse and screaming more which I didn't think was possible.
It's now a few weeks later and Zac is to the point where he won't even let something touch his lips before he starts bawling. Often times he struggles with swallowing his own spit. He was really sick last week and I couldn't get him to take tylenol. He had a fever for 4 days that I couldn't break because I couldn't get enough meds in him.
Zac went into his 15 month well check today and he hasn't gained weight in 6 months. So we are now being faced with the decision of using a feeding tube. The concern with a feeding tube is they aren't mean't to be long term and he will just pull it out, so we would have to keep reinsterting it. So there is talk about putting a tube straight into his stomach. We are also contacting the dysphagia clinic to see if they can help with his complete inability or willingness to swallow.